Monday 11 August 2014

How to have an M.E. gathering

I love meeting up with my M.E. friends and have been to gatherings large and small.  Here is a list of things to consider when planning a spoonfest!

·        Take regular breaks, plan when to stop and rest at the begging and stick to it!

·        If not everyone wants to rest each time, that is ok but make sure you work around everyone's base line.

·        Think about numbers
-Too many may be too tiring and loud.  
-If you want to have a large gathering over-invite, expect people to drop out last minute.
-Three people works really well, one person can be resting while the other two chat.

·        If you are under age, or will be meeting people who are under age, think about safety make sure that there is a trusted adult near buy.

·        If you are meeting someone you have not met before, bring a friend and meet in a public place.

·        Think about length of time, if people are travelling long distances it is not worth meeting for only a short time, but a meeting that is too long will cause unplanned payback.

·        Think about dietary requirements, people may have intolerances.

·        Think about accessibility 
-Allow for walking sticks and wheelchairs.
-Provide a separate room for resting
-Make sure the entrances to buildings are accessible and that there is a downstairs toilets. 
-How will people get there? Is there a train station near buy, parking?



Me and Sarah, my spoonie friend



2 comments :

  1. I'd love to live closer to other spoonie friends I've met online! When we're all cured we can have a massive party and we won't even need to take into consideration anything on your list! That will be the day huh!

    Hayley-Eszti
    www.hayleyeszti.blogspot.com

    ReplyDelete
    Replies
    1. Wouldn't that be amazing! I am lucky to live close enough to a few spoonie friends that I can get to by train. One day...

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